SYRACUSE, N.Y. — Four Syracuse organizations will use a federal grant to research frailty issues in Central New York.
The nonprofit Patient-Centered Outcomes Research Institute (PCORI) has awarded F.O.C.U.S. Greater Syracuse a grant of nearly $15,000.
F.O.C.U.S. Greater Syracuse will work with HealtheConnections, the Southwest Community Center, and Upstate Medical University to develop a Central New York Citizen’s Aging Research & Action Network (CNY-CAN).
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The nonprofit F.O.C.U.S. Greater Syracuse is a “citizen-driven” organization that works to impact change in Central New York. F.O.C.U.S. is short for forging our community’s united strength, according to its website.
HealtheConnections is a nonprofit that supports “the meaningful use of health information exchange and technology adoption, and the use of community health data and best practices, to enable Central New York stakeholders to transform and improve patient care, improve the health of populations and lower health-care costs,” according to its website.
The four organizations will use the funding to “build a partnership of individuals and groups who share a desire to advance patient-centered outcomes research focused on frailty across the life course,” according to a news release.
They announced the grant and the research initiative Tuesday morning at Upstate Golisano Children’s Hospital in Syracuse.
“What we’re going to do is engage people with conversations. We’re going to go out into various aspects of Onondaga County and have conversations with older adults to find out what their concerns are and how we can keep them in their own home,” Dr. Sharon Brangman, professor of medicine and division chief of geriatric medicine at Upstate Medical University, said in her remarks at the event.
PCORI’s Pipeline to Proposal Awards program provided the grant funding. Pipeline to Proposal Awards enable individuals and groups that are not typically involved in clinical research to develop community-led funding proposals focused on “patient-centered comparative effective research (CER),” according to the release.
CNY-CAN’s vision is to create a coalition of citizens, patients, formal and informal caregivers, clinicians, researchers, and health systems to “guide” aging-related research; participate in research and project teams; “be champions” for patient-centered research; help translate research into practice; and help sustain CNY-CAN as a community resource, the release stated.
Under the Tier I award, CNY-CAN’s initial stakeholders will become educated on patient-centered outcomes research and best practices; learn about research in while CNY-CAN could be engaged; and create a strategic plan defining CNY-CAN’s vision, mission, priorities, structure, governance, and operational policies.
It’s an opportunity for citizens to have an “impact” on public policy, Charlotte (Chuckie) Holstein, executive director of F.O.C.U.S Greater Syracuse, said in her remarks at the Tuesday morning announcement.
“Wherever our medical or health-care research goes, for the frail elderly, we’ll also have an impact on public policy, so we were very delighted with that,” Holstein said.
Washington, D.C.–based PCORI is an independent, nonprofit organization that Congress in 2010 authorized to fund CER “that will provide patients, their caregivers, and clinicians with the evidence needed to make better-informed health and health-care decisions,” according to the news release.
Congress authorized the establishment of PCORI in the Patient Protection and Affordable Care Act of 2010, according to the PCORI website.
Contact Reinhardt at ereinhardt@cnybj.com
**PHOTO CAPTION: Dr. Sharon Brangman, professor of medicine and division chief of geriatric medicine at Upstate Medical University, on Tuesday spoke during the grant and research announcement at Upstate Golisano Children’s Hospital in Syracuse. (Eric Reinhardt / CNYBJ)
